Attention Deficit Disorder in the UK
Welcome to the ADD/ADHD in the UK Page
This is a web page for people interested in Attention Deficit Disorder (with
or without Hyperactivity) in the United Kingdom. I intend to provide links
to other ADD pages on the web which are of use, as well as giving other
useful addresses and information. These pages will be constantly under
construction, as information is bound to change. If you wish to learn more
about me, you can see my own
If you would like to add information or make suggestions for these pages, please
feel free to
me. My address is
Plans for this page
In the near future, I wish to extend this page somewhat. I plan to have versions
in other languages, and have started on the German, French and Russian versions
already. If you wish to translate this page into your native tongue, please feel
free, and then
E-Mail it to me.
I will then get it checked for accuracy, content and everything, and include a
working link to it. Watch this space!
Links on ADD
This section gives some really useful links to other ADD pages that may be of use.
I have given my views on each, but you may disagree with my assessment. If you do,
let me know.
To find out what ADD is, I would suggest the
ADD WWW Archive.
This page gives you links to all sorts of other useful pages, and helps you to
both define and deal with ADD. It is an excellent bookmark for future reference,
and a good initial page for someone seeking information. Also good when searching
for specific information.
For practical information,
50 Tips on the Management of ADD
has to be a good scource. It has many tips and suggestions to help with ADD management,
and whilst my wife and I have not adopted all of the suggestions by any means, many of
them are still very useful. This is the page for coming to terms with and compensating
If you wish to get more technical, I would suggest the
for information. This page will answer any further questions you may have.
For an excellent list of ADD personal contacts, I would try out
Kellye Culberth's Link page.
Also, for North Americans, try
"For all the special kids in the world".
Whilst the site is pretty mediocre and corny, the addresses given are both
relevant and good. Not much point going here if you are not in N.America though. My advice
then is to use one of the previous links, and skip this one. Apart from the addresses
and telephone numbers, it is pretty irrelevant.
Whilst this list is by no means comprehensive, it will give you those all important
initial links. From these pages you can access all the general ADD information you need.
For ADD/ADHD discussion and feedback, I would suggest three sources. Firstly,
on the news groups is a good forum. Also, you could subscribe to the
ADD Mailing List.
Just leave the subject line blank, and in the bulk of the text, type in:
Subscribe ADDult Fred Bloggs
where Fred Bloggs is your real name. This is a good group, but don't make the same mistake
I did, and get into an arguement. It is full of people with ADD, and is therefore a
strange mixture of extreme caring and extreme stroppiness. Be prepared. It has to be
one of the best forums for information and debate on the Internet though.
Finally, if you have IRC, try joining #ADHD. This is a forum of ADDers from (usually)
the USA, and a good source of information, as well as a shoulder to cry on.
Finally, we come to the UK contacts. The most useful one is the ADD/ADHD Family Support
Group. This organisation I have found to be the most useful scource of help, support
and advice available in the UK. I would recommend a first course of action to be writing
to them for an information pack. They are a registered charity, (No 1041941), so whilst
they generously offer their services for free, making a donation might be a thoughtful
gesture. I have always dealt with Barbera and Brian Tuffill on (01380) 726710. You can
Mrs Gillian Mead. (President)
1a The High Street,
Another good contact would be the Hyperactive Childrens Support Group. They tend more
towards natural remedies and sollutions, especially for children.
71 Whyke Lane,
Tel: (01803) 725182
Another good contact is LADDER. I do not know the telephone number.
95 Church Street Rd.
I have also heard recently of a group in South London. I have asked for more info, but
the details are:
Sue Waren, Membership Secretary
ADD/ADHD Support Group (South London)
32 Abbottswood Road, Streatham, SW16 1AP
phone 0181 769 1667
or via Kathy West: 106324.161@Compuserve.com
or via John Deane: 101601.520@Compuserve.com
For Doctors who diagnose ADD, I would recommend speaking to the ADD/ADHD Family Support
Group, shown above. However, for an NHS referral, I would suggest
Dr Brian TOONE
Department of Psychological Medicine
Kings College Hospital
Tel: (0171) 346 3226 Ext. 2586.
This department diagnoses ADD, follows up, and is researching into the disorder. One
area of research is the link between ADD and
It is up to your GP to refer you if he/she is willing.
Another group that may be of use are the Thanet ADDers. This is a support
group for sufferers of ADD/ADHD and their
families in Thanet, Kent. They have adult and child ADD sufferers as members.
They are also very open minded with regards more natural approaches to
handling ADD/ADHD. Their
has information, links and local news and
they have just added an online bookshop in association with Amazon.com, where
you can purchase ADD/ADHD books online. Any small commission we might earn
from this will go into Thanet ADDers funds for the benefit of their members.
They started the group on 20/1/97 and now have a regular youth group and hold
monthly adult meetings, usually on the first wednesday of the month. Also, they
have also just received a grant from Dave Lee's Happy Holidays to take the
whole group (just over 100 members) to Chessington World of Adventures for
a day out.
Key quote would be "I would think the most important aspect of our approach is
that we view ADD/ADHD as a potential ability rather than a disability."
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Thanks to Pavilion for their help and support with this page.
Updated 27th December 1996.